It takes an average of 6 years to diagnose a rare disease*.
We believe that is 5.9 years too long.
Rare Disease Genetics. Clear Next Steps.
A timely diagnosis is essential when there are potentially disease-altering or life-saving treatments available. Even in the absence of FDA-approved therapies, timely diagnosis can have a profound impact on the management of irreversible symptom progression**.
Jura Health accelerates the diagnosis of rare diseases and understanding of next steps by creating a supportive health platform that is accessible to all.
Introducing the Emergeâ„¢ Platform
* EveryLife Foundation for Rare Diseases Delayed Diagnosis Study
** EveryLife Foundation for Rare Diseases; Sept, 2023